Visibility Vol 11 Issue 3 & 4, 2017


Factors related to More Frequent Worry about Eyesight and Self-reported Progression of Vision Loss in Retinitis Pigmentosa Patients


Previously there were very few opportunities to obtain systematically collected information from a very large sample size of patients with a rare, orphan disease, such as retinitis pigmentosa (RP). A relatively new, international, online registry has been developed for individuals affected by inherited retinal degenerative disease (IRD), known as My Retina TrackerĀ®. This registry is intended to: improve understanding of the types and prevalence of IRDs; support and promote research in the IRDs; and facilitate clinical studies and trials.

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Assessment of online patient education materials designed for people with age-related macular degeneration

Jennifer Fortuna, PhD, OTR/L; Linda Shuster, PhD, CCC-SLP, F-ASHA; Anne Riddering, PhD, OTR/L, CLVT, COMS; Cassie Lopez-Jeng, PhD, MPH, CPH, CHES

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Minding the Gap: Determining Causes for Missed Low Vision Referrals to Develop a Streamlined, Sustainable Low Vision Rehabilitation System in Wisconsin

Katherine Dalzotto MD; Mark Banghart MS; Christina Thomas-Virnig PhD; Sanbrita Mondal OD

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Assessment of Modified Patient Education Materials for People with Age-Related Macular Degeneration

Jennifer Fortuna, PhD, OTR/L; Linda Shuster, PhD, CCC-SLP, F-ASHA; Anne Riddering, PhD, OTR/L, CLVT, COMS; Cassie Lopez-Jeng, PhD; MPH, CPH, CHES

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